After finding out I now suffer from this incurable disease. I thought
I would use what I know about the internet, to help anyone else who sufferers
from Chronic Fatigue Syndrome. I will provide links below, to help you
find all the support you can get. I have to say, I found more information
on the web, than what my doctor would even bother telling me about.
To my fellow sufferers. You are not alone. There are many support groups out there. I guess there can be a little solace knowing that others know exactly what you are going through. I know some will say, it's not that bad for me. Unfortunately, those people are few, compared to those that are bedridden, and missed so many days from work, they are constantly on unemployment.
|What is Chronic Fatigue Immune Dysfunction
It can cause a temporary or permanent disruption of your normal home, social, and work activity. Some have even been permanently incapacitated. I've been told, no one knows what causes it, and there is no current cure. In other words, it doesn't affect enough people to try and find a cure for it. (If I sound bitter, I guess I am. Once you get this thing, your whole life is messed up.)
Other names for CFIDS
What are the predominate symptoms?
The tough thing with the disease, is that there is no set test that
a doctor can give you to diagnose the disease. In eight months of testing
for myself. I went from Miniere's disease, MS, Hyperthyroid, Anemic, to
finally...Chronic Fatigue Immune Dysfunction Disease.
Is there a cure?
I am sorry my friends, but as of this moment. There is no cure for CFID's, ME, of FM. I was told they can only treat the symptoms. In other words you're in pain? Take pain killers. If you are totally exhausted? Lay down and rest.
Doctors to see?
Doctors! Have I seen the Doctors! Get used to seeing many, before you get a final diagnosis.
These are the Doctors I had to see:
In conclusion, I have to say...I am not a specialist! I am not a doctor, or an expert. Just someone that has contacted something that has changed my life! I want to go outside, but I can't walk two blocks without getting tired. I've worked thirty years of my forty six on this planet. Staying home is driving me crazy! Not to mention, the stress of the potential of losing my home. (disability, I've been told; is very difficult to get for CFID's sufferers.)
As I said before, this disease is called the Invisible Disease. You can't see it physically. Most of your friends and family will think you are making it up. That it's all in your head. I've read, that it literally is. Something is happening inside, that has short circuited our bodies. Hopefully, in the near future, they will find out what causes the disease, and be able to stop it.
Once I find information on any new medications, and treatments for our so called. "Invisible Disease" I will post it on the site. Until then, as I've always said...
Keep the faith, and keep in touch.
Virginia The Lady in Waiting
|A few Links to helpful sites:
Vestibular Disorder Association (VEDA)
Personal page for FM
We Are FMily
Health FMS website
Kaplans CFS site
Support Groups for FM/Cfids